Networking Hub Event - 1100-1300
11:00, Wednesday, 8 March 2017
Featuring guest speaker Sue Davison of DEBRA.org
DEBRA is the national charity that supports individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal.
DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had EB – the charity was the world’s first EB patient support group. Epidermolysis Bullosa (EB) is a group of genetic skin conditions which cause the skin to blister and tear at the slightest touch.
Sue will be coming along to raise wareness of the condition and share stories of how many people live with EB every day, including Chepstow's Handyman, Trevor Baker.